Comments on: Seizure Monitors http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/ Just another American Epilepsy Outreach Foundation Blogs weblog Tue, 10 Aug 2010 01:07:53 -0700 hourly 1 http://wordpress.org/?v=3.0.1 By: Margaret Storey http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-209 Margaret Storey Tue, 10 Aug 2010 01:07:53 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-209 Hi, Doug, Thanks for posting, and my apologies for the delay in replying---Contrary to your experience, the monitor never caught one of our daughter's seizures, but it is wonderful to hear that you are having success. What is the cause of your daughter's seizures? My little girl has Aicardi Syndrome, and her seizures are a form of spasms.... Feel free to email me directly at margaret.storey@mac.com. Margaret Hi, Doug,
Thanks for posting, and my apologies for the delay in replying—Contrary to your experience, the monitor never caught one of our daughter’s seizures, but it is wonderful to hear that you are having success. What is the cause of your daughter’s seizures? My little girl has Aicardi Syndrome, and her seizures are a form of spasms…. Feel free to email me directly at margaret.storey@mac.com.

Margaret

]]> By: Jennifer http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-208 Jennifer Mon, 09 Aug 2010 04:10:41 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-208 @ Doug (August 2, 2010 @ 7:18pm) Is the type of seizures your daughter is having the "QUIET" ones that are in this story? How does the monitor pick up these?? Our 4yr old daughter was just DX with BRE and we are struggling with how to monitor her, we are currently looking into a seizure alert dog but would like a back up. Thanks @ Doug (August 2, 2010 @ 7:18pm) Is the type of seizures your daughter is having the “QUIET” ones that are in this story? How does the monitor pick up these?? Our 4yr old daughter was just DX with BRE and we are struggling with how to monitor her, we are currently looking into a seizure alert dog but would like a back up. Thanks

]]> By: Doug http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-207 Doug Tue, 03 Aug 2010 02:18:33 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-207 Hello, i purchased one of these units about a year ago and i dont know what i did without it before... It has caught every seizure and my daughter only has these at nights as well.. It sounds like our children have the same type of seizures so i would love to get in contact to compare notes.. Hello, i purchased one of these units about a year ago and i dont know what i did without it before… It has caught every seizure and my daughter only has these at nights as well.. It sounds like our children have the same type of seizures so i would love to get in contact to compare notes..

]]> By: Justin http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-166 Justin Fri, 15 May 2009 08:26:33 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-166 It's been a month since the date of your post. I was very curious to know if your daughter has had a seizure yet and how the Emfit monitor worked. I have been researching a couple of different monitors for the last few days and unfortunately there is not much information out there. It sounds like my daughter and yours have very similar types of seizures and I would be very curious to hear a follow up to this post so I can purchase one of these. It’s been a month since the date of your post. I was very curious to know if your daughter has had a seizure yet and how the Emfit monitor worked. I have been researching a couple of different monitors for the last few days and unfortunately there is not much information out there. It sounds like my daughter and yours have very similar types of seizures and I would be very curious to hear a follow up to this post so I can purchase one of these.

]]> By: Karen http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-96 Karen Thu, 07 May 2009 02:32:43 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-96 I don't know why but I didn't see the paragraph you wrote at first about the ability of this device you ordered to be preset regarding frequency of movement. Sorry! I don’t know why but I didn’t see the paragraph you wrote at first about the ability of this device you ordered to be preset regarding frequency of movement. Sorry!

]]> By: Karen http://epilepsyoutreach.org/blogs/freeyourmind/2009/04/14/seizure-monitors/comment-page-1/#comment-95 Karen Thu, 07 May 2009 02:29:22 +0000 http://epilepsyoutreach.org/blogs/freeyourmind/?p=34#comment-95 I just read about a device that detects seizures, and cessation of breathing. If you can, take a look and tell me what you think about it. Would this be helpful for your situation? I am trying to get one for my son. Here is the website address http://medpageusa.com/ST1BedMotionMonitor.html I just read about a device that detects seizures, and cessation of breathing. If you can, take a look and tell me what you think about it. Would this be helpful for your situation? I am trying to get one for my son. Here is the website address http://medpageusa.com/ST1BedMotionMonitor.html

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